I'm not alone out here and for that I am grateful. So I fgured I should learn to make my own. Thank you for keeping me educated and uplifted….. You have helped me become a better mom. Mom Needs Help. And our reactions are distinctive gluten reactions. You are fighting the good fight sir and I appreciate you more than my words can really say. Also why not simply buy Rice flour? At Bob's Red Mill, we say "unprocessed is our process." ... Bob's Red Mill. I’ve never trusted restaurants, won’t go out to eat, period. Gluten Dude and many commenters on this blog have said that even after going GF they still had GI issues, and it wasn’t until they cut out processed food altogether that they felt better. When I see the gluten free with an astrisk I see red. They post on ther website and email those on the subscription list, but no news releases, no contacting the media, etc. From what I’ve read about celiac, I wouldn’t be comfortable baking for someone with it because I don’t have a 100% gluten-free kitchen. Customer Service Representative Thanks. I tried that several months ago, and reacted badly to it. I found out about this directly from the CFIA’s email service (I totally recommend subscribing if you’re in Canada, perhaps even if you’re not!) And do you seriously think the world should know about a problem I have and that it’s comparable to celiacs possibly getting sick? I, for one, get stomachaches from arrowroot and I’m not even a Celiac (though likely have non-celiac gluten sensitivity). I stopped using Bob’s flour and products when I heard about some problems with them last summer, and I personally got so sick from them. I limit myself enough by being gf and sometimes I just need to bake :). This community makes a person feel like they are apart of a larger family. Thank you. hollandandbarrett.com is a trading name of Holland & Barrett Retail Limited,. Is there enough gluten in Bob’s product to make a celiac sick? I am with you Jennifer.. 3. the grains would have to be transported in vehicles used solely for GF crops. Bob’s Red Mill Gluten Free All Purpose Baking Flour. Very well said. It is so nice to not be alone through all of this. We cannot tolerate ANY ppm. For those people who will no longer buy Bob’s, don’t think that other producers are immune to this happening to them. Additionally, if you have Celiac, you probably have other intestinal issues too. I’m at a loss right now. Incidentally, the coffee that was used to perform that Cyrex test was INSTANT coffee. I’m interested to see if my son’s next test comes back with better results. After I lost my job I felt worthless and tried to take my own life. Beyond this gluten contamination is common in the food supply and many grains and flours that are inherently gluten free may still contain gluten once processed. Sorry. No more Bob, ever. Check the CFIA link below; I’m not trying to come off alarmist about it, but you’ll see this is the eighth time this year their inspections have turned up undeclared gluten, but only the first for BRM. So, my point in sharing the info about the Cyrex test was just to show that it’s quite possible that foods we consider “gluten-free” (which, in fact, ARE free from the gluten contained in wheat, rye, barley, etc) are causing the same reaction as if they did contain gluten. I’m in no way absolving BRM of their mistake but that might be all it was, a mistake. Of course they are going to try to make nice and smooth things over. I will certainly be following this story and will be anxious to see if Bob’s issues a response. The seriousness, the comedy, the information, all of it has helped me transition as smoothly as possible. They could have tested it and found it just fine and lied about it. You gave that to us. For many of us, it means our internal organs are put under attack, and/or a host of other physical consequences are springing forth. Try Jules Gluten Free… have Never had a problem with any of their stuff and gave up on BRM long ago… YOU CAN BAKE!!! I mentioned it, however, because I know that the researchers who came up with that test are currently testing other foods they have found to be cross-reactive (or cause an immune response, for lack of a better term) as well. There is no uniformity, and even those places that say they are aware of celiac/G intolerance vary in what exactly that means in practice. For the first time in 14 years I found a place where I feel “normal”. How many stores stock your products in their gluten-free section? Thank you. I appreciated your observations about BRM. Not so easy. It makes a ginormous difference to me to have an outspoken, educated and funny voice here on this p-o-s gluten-free roller coaster. I'm glad to meet a sane individual in the same boat as me. Can you be 100% sure that it is what is claimed. I'm recently diagnosed celiac but being an adept cook it hasn't really bothered me. I hope Canada was wrong. Gluten Dude…you have touched so many lives and you have a way of making anyone who finds your blog to feel so understood and a part of a welcoming and supportive community. I appreciate your input…honestly…but I’m left a bit speechless on this one. On to the next…. Let’s just see how this plays out. I said my peace. I’ve discovered this the hard way through painful elimination diets. And saying that you “voluntarily” withdrew all packages is honestly nothing to celebrate. Socially, maybe it’s not fun, but I’d rather be healthy. You are doing a great job of monitoring companies for gluten free or reduced products for accuracy. Please, folks, respect those of us who are avoiding gluten in order to improve our health. My Unbelievable, Amazing, Awesome, Special Valentine. Rather disappointing. Everyone seems to have different reactions to gluten, so to dismiss everyone else’s experiences and responses to BRM products and give the company a pass is harmful to the entire GF community. I was amazed no pain or swelling for the first time since I can remember. The doc’s report and pathology reports noted some scarring in the intestinal walls (from long undiagnosed celiac) but healthy villi. Coffee beans or freshly ground beans are a different matter entirely, presumably because of the high likelihood of gluten cross-contamination occurring with instant coffee grounds. Shop Bobs Red Mill All Purpose Baking Flour, 600 g. Select Your Cookie Preferences. I plan to report it to the FDA, although since the product was made before the law went into effect, they are not in violation. please read about it.. I don’t think Bob’s does any worse or better than other companies. If some of you also have a corn allergy that could be an additional source of reaction. Saying you don’t have to worry about contamination or gluten isn’t quite accurate. What is the Canadian food agency’s track record in terms of accuracy of food testing results, contamination etc? You WILL still get sick eating ANY gluten if you have Celiac or gluten sensitivity—whether your reactions are overt or not. But realistically, many celiacs have ADDITIONAL FOOD SENSITIVITIES and are unable to digest oats ( which is why some docs suggest cutting them out the first 2 years after DX) , so it is possible that those are causing an adverse reaction. It's an awesome place. You can quibble with that all you want but that doesn’t make a product that follows that guideline “not gf”. Because if they don’t, you have quite a problem on your hand, don’t you? I order from them. Sorry. Jennifer Esposito all but said as much herself in the early part of this very comment thread. If you don’t. We’ve done exhaustive elimination diets and I have every reason to believe BRM contains gluten, albiet trace amounts, which many true Celiac patients react to. Should Celiac ‘Leaders’ be Promoting Gluten-Free(ish) Cheerios? I really hope they clear clear this up and fix it right. Thanks for sharing that story about Jennifer Esposito. Aside from this incident I feel like they are one of the “good guys” — they are forthright, for example, on their GF oats packaging that some celiacs are sensitive to even the purest of oats and accordingly advise caution — and I will be interested to see their response. Our Gluten Free Facility is completely separate from our Conventional Facility. I hadn’t heard that and can’t find it. Bob's Red Mill Gluten Free Chocolate Chip Cookies are a easy classic chip cookie we all need in our life. Every search for a GF food kicked me to a blog, somehow, some way. Mama … it’s also possible that your daughter is reacting directly to the arrowroot powder. you are eating at your own risk. Listen to your body. I am so beyond frustrated – the new labeling law won’t even matter if we still can’t trust the “certified gluten free” companies. Is Omission Beer Really “Risk-Free” for Celiacs?? I have been diagnosed 10 years....and THIS is what I've been missing. hth, http://blog.bobsredmill.com/gluten-free/voluntary-withdrawal-gluten-free-sweet-white-sorghum-flour/. But I don’t see that happening. How about you change your production methods so there is no chance in hell that your products can come anywhere near the 20ppm? I became very very depressed ( struggled all my life and also a symptom of food allergies) . As a celiac and a dietitian I have long believed that many people, including myself, continue to have gluten exposure unintentionally, no matter how much “education” we have. But, they did find that their anti-gliadin antibodies (antibodies that recognize the protein fraction of gluten) did cross-react with all dairy including whole milk and isolated dairy proteins (casein, casomorphin, butyrophilin, and whey)—this may explain the high frequency of dairy sensitivities in celiac patients—oats, brewer/baker’s yeast, instant coffee (but not fresh coffee), milk chocolate (attributable to the dairy proteins in chocolate), sorghum, millet, corn, rice and potato. Damn it! He stated that he does random testing to 10ppm. The guys got a heart of gold and really does want to help us out. This isn’t to bash everyone with a uniform stick – some may be genuinely trying and mean well. They are not interested in 'food trends', in fact Bob's philosophy is to keep providing whole grain foods that have endured the test of time. I do not consider her reputable. Those with Non-Celiac Gluten Sensitivity, however, are still doing damage in their body by eating gluten (and other cross-reactive foods), but it can be a “silent killer.”. You can replace wheat flour with Bob's Red Mill Gluten Free All-Purpose Baking Flour in a variety of recipes. BUT an additional sticker was on it stating “Contains dairy”. Try Jules Gluten Free. At each point in the process the product was found to be well below the Canadian Food Inspection Agency’s standard, which is also a maximum of 20 parts per million. You’re not exactly making kale chips with that flour. If you have any Asian grocery stores near you, buy generic-brand rice flour. New Celiac Problems. Me again: He did not really address why their GF dedicated facility may still have up to 19ppm of gluten. (I found this page looking for info on the difference between “sweet white” sorghum, and “sorghum”.). A list of FDA Consumer Complaint Coordinators is posted at FDA’s website: http://www.fda.gov/Cosmetics/GuidanceComplianceRegulatoryInformation/ucm074201.htm This website has made a significant impact on me. I recently ran into this very situation with Oskri brand Dark Chocolate Coconut Bars. I hope I’m wrong. She seems to recommend Authentic Foods but only because they do a superfine grind. It’s just there. However, I haven’t spent a lot of time on this site and might have missed some unwritten rules that the “regular” posters have sort-of established. Ate BRM pancakes, had an obvious reaction. This blog has helped me a TON! Together you have all educated, made me mad, made me cry and most importantly, made me feel like I'm not alone in all this. In April however, the CFIA reported after further testing that the original test results were false positives, and so the original recall was rescinded. Some of my comments were in response to John, and were not directed at you. Why would they lie and risk litigation? By the way, I highly respect those of you in the Celiac community, and I can sympathize with the difficulty of finding safe foods to eat. Thank you for your blog, which brings a sense of sanity to my chaotic world! It’s just the thing for those sensitive to gluten. Yikes! The AIP Diet: When Gluten-Free is Not Enough, What to Expect After Your Celiac Diagnosis. Bob’s IS nutritionally devoid junk food. Gluten Dude…….your blog has given me so much info when I started on this gluten-free journey a year and a half ago. ... We Also Liked: King Arthur Gluten Free All Purpose Flour. The Celiac Landscape is Getting Treacherous…and It’s Our Own Fault. I hope it is not true though. THANK YOU! You changed the journey for me. Multiple checks are in place to prevent gluten contamination. If you’re not gluten-free, you can use any regular all-purpose flour. The gluten free diet is scary and confusing, and it doesn't help that it is misrepresented by predatory money grubbers like Papa Johns or Omission (I'm still holding a grudge because I was badly glutened by their nasty beer when it first came out). I do not buy anything that is processed on shared lines, due to my Celiac son. Go easy on Bob. What Do I Do? An Interview with Dr. Peter Gibson, Let’s Talk About (Gluten) Intolerance: An Interview With Chef Marc Vetri, An Interview with Jenna Drew: Miss NJ International and Fellow Celiac Advocate, 20 Emails in 4 Days: Part IV (the final act), Celiac.com: A Tragic Tale of Good Intention$ Gone Awry. Constant checking. You make a huge difference by bringing us all together in this celiac/coeliac “family”. I saw him 2 days after my stroke and he was a godsend, even though I haven’t been the best patient and always have learned the hard way. Love the way that you encouraged him test down to 3 ppm. Garbanzo Beans (chick peas) are one of the creamiest and tastiest of beans. Bob's Red Mill Gluten Free 1-to-1 Baking Flour is the perfect solution for your gluten free diet! after recent testing revealed the presence of Salmonella in a tested sample of Organic Amaranth Flour (22 oz.) Your writing is amazing. But I can’t help but wonder now…. What’s a Celiac to do? So thank you so much! To really be sure, I waited 3-4 weeks and tested it again with pancakes, from a brand new 1 lb.bag I had not yet opened. I truly understand the seriousness of Celiac Disease but the food industry is a risky business with milk, eggs, human hands, refrigeration, etc. While I completely understand the concern about gluten contamination in many “gluten-free” products, and it’s a very real threat/possibility, I think it makes sense to consider whether a person is reacting to the gluten-free grain or food itself, not any potential gluten in the product. Advice? Thanks for looking after me Government of Canada. The gluten protein itself is NOT harmful. It’s classified as Class III??? I get it…that’s all that you need to do by law (well…as of next year.) The blogs, comments and links from you and others in this community have given me much of my life back. I have read your post and called Bob’s Red Mill. Believe me, it makes me mad that something so important is so fickle and subject to so much manipulation by the companies. Change Your Diet. I have a coeliac teen and your stuff is perfect for her, a balance of info and fun. He may still be. I know I am just one person, but I hope you know how important you are to SO many of us! We got a bag, ate it, later my husband noticed on the back “may contain traces of wheat” What the crap :(. What a relief to find what you are doing here. This award-winning flour blend can be made into delicious baked goodies and breakfast items such as cakes, cookies, breads both sweet and savoury, muffins, pancakes and waffles. This is frustrating. So here’s my plea to you Bob. Thanks Dude! And you know what’s the most expensive thing? Thanks! Gluten Free Oat Bran, 18 oz. So you may be on a bit of shaky ground already and this could really be a tipping point for you. BRM could take the higher road and go the extra mile for the Celiac community—but they are choosing to take the path of ease. Copyright © Holland & Barrett Retail Limited, 2020. Hi Bob. Thank you from the bottom of my heart. Is that a good reason to test to lower levels? I suspect arrowroot is a potential cross-reactor to gluten. Yourselves, to make money off a fad. Haven’t we been discriminated against, put to the side and swept under the rug enough? This item: Bob's Red Mill Gluten Free All Purpose Baking Flour 600 g (Pack of 2 £10.85 (£9.04 / 1 kg) Bobs Red Mill One for One Gluten Free Baking Flour 500 g (Pack of 2) £9.05 (£9.05 / 1 kg) yourhealthstore Premium Gluten Free Xanthan Gum 100g, Extra Fine Powder (Recyclable Pouch) £3.89 (£38.90 / 1 kg) More items to explore Bob's Red Mill. (Personally, I’ve never seen another brand of arrowroot besides BRM, but I haven’t searched high and low for one.) It all smacks of a company backpedaling fast trying to get around a serious problem. Kinnikinnick tests to 5ppm and is a dedicated facility. 1.24 KG . I am one of the people who would buy Bob’ Red Mills products simply because they worked in my GF /vegan recipes. So clearly, they have not fixed the problem. Link that has gluten in Bob ’ s fc=0 & fd=0 &.. Disease up and I have found certainly do help, educate and have me laughing like crazy difficult and! Will do right by their loyal customers create here f * * together! 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